We're so excited for this years 2021 VIRTUAL Eversource Walk for Boston Children's Hospital! This is the 3rd year ATK is participating...

ATK's first (of many) Commemorative Challenge Coin in now available! Designed and donated by a Canadian Kabuki Syndrome Dad, Earl Van...

The Kabuki Syndrome community is invited to participate in a virtual research presentation hosted by Dr. Kasturi Haldar of University of...

Many of you know my Mama owns and operates Kabuki Coffee here in Alaska. She opened at her first location 11 years ago because her love...

Check out this great story about Harrison's feeding struggle to success published on UNC's website. 'Having a child sick or in the...

The Roya Kabuki Program has an Ophthalmology Study Opportunity now available for patients GENETICALLY diagnosed with Kabuki Syndrome and...

Dr. Bjornsson is a well known researcher in our community and one of ATK's fabulous medical advisors. We're building his page on our...

There are three research opportunities available at Kennedy Krieger Institute. Patients must be GENETICALLY diagnosed with Kabuki...

What a phenomenal team we have! This evening, the majority of our team was able to meet on zoom and do a brief introduction ... who,...

The article 'Growth Charts in Kabuki Syndrome 1' was published in December 2019. Kabuki Syndrome 1 refers to the KMT2D gene....

Dear Kabuki Syndrome Community, We have received many messages today about the life expectancy of individuals living with Kabuki...

Our Spanish brochure has been updated and is back on the website! We'll be working on building a page for our Spanish speaking families,...

You are A*M*A*Z*I*N*G! Our Kabuki Syndrome Patient Registry is FULLY FUNDED in just 15 days!!! As of 10:30 am we reached $10,004! Thank...

We'd like to say THANK YOU and send a shout out to Kabuki Sibling, Michaela Ryan, and Girl Scout Troop 1750. The troop had some funds...

Diamond Painting is here! ATK now has 13 custom Kabuki Syndrome designs in 4 different sizes! Diamond Painting is a fun, relaxing...

We are excited to finally share with you that the Roya Kabuki Program and All Things Kabuki collaborative poster is now live at the...

There is always a mix of emotions when we share about the loss of a Kabuki Warrior, or now, update our Green Star Tribute page. A...

THANK YOU to our amazing community - families and supporters! In just 24 hours you have raised $4,000 of the $10,000 needed to launch a...

Our popsockets are here ... the original design we ordered. :) Both are now live on our website for US and International shipping. >>>...