Kabuki Syndrome Awareness at NORD!

We are excited to finally share with you that the Roya Kabuki Program and All Things Kabuki collaborative poster is now live at the National Organization for Rare Disorders 2020 Virtual Summit! How appropriate is the timing for this awareness opportunity?


We are so grateful for the work the Roya Team invests into our community. Together, we are stronger! Together, we can advance research while pursing a treatment and/or cure for our loved ones affected by Kabuki Syndrome.


You can view or download a PDF of the poster on our website at allthingskabuki.org/parents


We are still working on our website, adding content and making navigation easier. Thank you for your patience. We've also noticed mobile viewing via apple devices is not the same as android - there are overlapping images on the iphone. We're trying to resolve this as quickly as possible. For the best viewing experience, visit our website on a computer.


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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.
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