RESEARCH/STUDY OPPORTUNITY | Roya Kabuki

The Roya Kabuki Program has an Ophthalmology Study Opportunity now available for patients GENETICALLY diagnosed with Kabuki Syndrome and a history of eye findings of any kind. No travel is required to participate.


Effective October 2020, the Roya Kabuki Program has expanded it's research consent capability to include e-consent.


For more information please visit allthingskabuki.org/roya





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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

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