Patient Registry Update | Day 1

THANK YOU to our amazing community - families and supporters! In just 24 hours you have raised $4,000 of the $10,000 needed to launch a Kabuki Syndrome Patient Registry through NORD's IAMRARE platform! You are amazing!


We have $6,000 more to earn by year end to meet our goal of a launch in early 2021! Donations can be made via our (fee free) Facebook Fundraiser, pinned to the top of our FB page, via our website allthingskabuki.org or via check/money order. Our mailing address is: 5155 E Capon Circle, Wasilla, AK 99654


We will continue to keep you updated on our fundraising progress. Again, thank you. Our work is made possible because of you!












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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.
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