Patient Registry Update | Day 1

THANK YOU to our amazing community - families and supporters! In just 24 hours you have raised $4,000 of the $10,000 needed to launch a Kabuki Syndrome Patient Registry through NORD's IAMRARE platform! You are amazing!

We have $6,000 more to earn by year end to meet our goal of a launch in early 2021! Donations can be made via our (fee free) Facebook Fundraiser, pinned to the top of our FB page, via our website or via check/money order. Our mailing address is: 5155 E Capon Circle, Wasilla, AK 99654

We will continue to keep you updated on our fundraising progress. Again, thank you. Our work is made possible because of you!

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