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Kabuki Dad's Virtual Group
ATK's Kabuki Dad's Group officially launches in May! Kabuki Syndrome Dad's and male caregivers are invited to join us for a one-hour...
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Rene King
- Apr 15
- 1 min
April Kabuki Coffee Hour
Kabuki Syndrome caregivers are invited to join ATK Moderators, Jesse & Olivia, for a one hour zoom session Saturday, April 29th at 4:00...
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Rene King
- Mar 7
- 1 min
Dads | Program Development Meeting
Kabuki Syndrome Dads are invited to join us for a second program development meeting/discussion. Please email info@allthingskabuki.org to...
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Rene King
- Mar 7
- 1 min
March Kabuki Coffee Hour
Kabuki Syndrome Caregivers are invited to join us for our March Kabuki Coffee Hour on the 18th at 8pm EST. Topic: Self-Care When You're...
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Rene King
- Feb 2
- 1 min
Kabuki Merch on SALE Now!
Check out our online store to grab your Kabuki Merch during our Rare Disease Month sale! Select items are Buy One Get One while others...
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Rene King
- Feb 1
- 1 min
Iris Wolf Memorial Grant | 2022 Program Update
We would like to thank Chris and Stefanie Wolf for their generous support of this program, in honor of their beautiful daughter, Iris....
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Rene King
- Nov 17, 2022
- 1 min
2022 Kabuki Syndrome Campaign
Did you miss our 2022 Kabuki Syndrome Awareness Campaign on Facebook? You can now view the entire campaign in one video! Thank you to all...
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Rene King
- Nov 17, 2022
- 1 min
Kabuki Syndrome featured at NORD Summit 2022
A Kabuki Syndrome collaborative abstract poster was presented at the NORD 2022 Breakthrough Summit again. We are so grateful for the...
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Rene King
- Aug 18, 2022
- 1 min
Rare is Beautiful is Back!
Get your Rare is Beautiful tees, toddler shirts, pull overs and zip up hoodies now ... before Kabuki Syndrome Awareness Month. This...
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Rene King
- Aug 1, 2022
- 1 min
Kabuki Syndrome Registry is Live
All Things Kabuki and the National Organization for Rare Disorders launched the first-ever patient registry for Kabuki Syndrome today,...
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Rene King
- Apr 23, 2022
- 1 min
Join Team Kabuki Friends for the 2022 BCH Walk
We invite the Kabuki Syndrome community, friends and family to join Team Kabuki Friends for the 2022 Eversource Walk for Boston...
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Rene King
- Mar 2, 2022
- 1 min
NEW Kabuki Syndrome Booster
ATK's newest booster Kabuki Syndrome is live now through March 15th. Get your Toddler, Youth, Unisex, Women's, Tank or Hoodie before it...
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Rene King
- Mar 2, 2022
- 1 min
Join Team Kabuki Friends for the 2022 BCH Walk
It's that time ya'll! Registration for the 2022 Eversource Walk for Boston Children's Hospital is underway. We invite the global Kabuki...
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Rene King
- Jan 25, 2022
- 1 min
Family Resources: Medical Trauma Flyer
ATK is pleased to announce the launch of our Family Resource Program. Another amazing friend, Kabuki mom and new volunteer has taken the...
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Rene King
- Jan 24, 2022
- 1 min
ATK Launches Advocacy Outreach Program
We are so excited about everything going on behind the scenes at ATK! We have a few programs launching this year and are eager to engage...
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Rene King
- Jan 24, 2022
- 1 min
We Stand With Rare Booster now available
ATK's 2022 Rare Disease Month booster is live now through February 2nd. Anticipated delivery date is February 18th. We did not have a lot...
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Rene King
- Jan 24, 2022
- 1 min
2022 Clinical Flyer
ATK's 2022 Clinical Flyer is now available to download or share with medical providers / offices in your area. PDF is available at...
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Rene King
- Jan 9, 2022
- 1 min
Family Spotlight | January 2022
Meet our sweet friend, Zia-Louise of New Zealand. You can read her about her journey with Kabuki Syndrome at: allthingskabuki.org/zia-lou...
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Rene King
- Jan 9, 2022
- 1 min
Takeda Survey Results Published
Did you participate in Takeda Pharmaceutical's 2018 survey? They recently shared the publication related to that data with us. You can...
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