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Awareness, Education and Support for Kabuki Syndrome

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    Join Team Kabuki Friends for the 2022 BCH Walk
    Rene King
    • Apr 23
    • 1 min

    Join Team Kabuki Friends for the 2022 BCH Walk

    We invite the Kabuki Syndrome community, friends and family to join Team Kabuki Friends for the 2022 Eversource Walk for Boston...
    18 views0 comments
    NEW Kabuki Syndrome Booster
    Rene King
    • Mar 2
    • 1 min

    NEW Kabuki Syndrome Booster

    ATK's newest booster Kabuki Syndrome is live now through March 15th. Get your Toddler, Youth, Unisex, Women's, Tank or Hoodie before it...
    27 views0 comments
    Join Team Kabuki Friends for the 2022 BCH Walk
    Rene King
    • Mar 2
    • 1 min

    Join Team Kabuki Friends for the 2022 BCH Walk

    It's that time ya'll! Registration for the 2022 Eversource Walk for Boston Children's Hospital is underway. We invite the global Kabuki...
    23 views0 comments
    Family Resources: Medical Trauma Flyer
    Rene King
    • Jan 25
    • 1 min

    Family Resources: Medical Trauma Flyer

    ATK is pleased to announce the launch of our Family Resource Program. Another amazing friend, Kabuki mom and new volunteer has taken the...
    44 views0 comments
    ATK Launches Advocacy Outreach Program
    Rene King
    • Jan 24
    • 1 min

    ATK Launches Advocacy Outreach Program

    We are so excited about everything going on behind the scenes at ATK! We have a few programs launching this year and are eager to engage...
    40 views0 comments
    We Stand With Rare Booster now available
    Rene King
    • Jan 24
    • 1 min

    We Stand With Rare Booster now available

    ATK's 2022 Rare Disease Month booster is live now through February 2nd. Anticipated delivery date is February 18th. We did not have a lot...
    29 views0 comments
    2022 Clinical Flyer
    Rene King
    • Jan 24
    • 1 min

    2022 Clinical Flyer

    ATK's 2022 Clinical Flyer is now available to download or share with medical providers / offices in your area. PDF is available at...
    52 views0 comments
    Family Spotlight | January 2022
    Rene King
    • Jan 9
    • 1 min

    Family Spotlight | January 2022

    Meet our sweet friend, Zia-Louise of New Zealand. You can read her about her journey with Kabuki Syndrome at: allthingskabuki.org/zia-lou...
    27 views0 comments
    Takeda Survey Results Published
    Rene King
    • Jan 9
    • 1 min

    Takeda Survey Results Published

    Did you participate in Takeda Pharmaceutical's 2018 survey? They recently shared the publication related to that data with us. You can...
    25 views0 comments
    Hypotonia and Kabuki Syndrome
    Rene King
    • Jan 9
    • 1 min

    Hypotonia and Kabuki Syndrome

    Have you participated in the Hypotonia research opportunity at BCH? It's not too late! Here's another publication we received, by some of...
    30 views0 comments
    ATK Closed Due To Severe Weather
    Rene King
    • Jan 3
    • 1 min

    ATK Closed Due To Severe Weather

    All Things Kabuki is currently closed due to severe weather conditions with frequent power outages. The Mat-Su Borough Mayor has declared...
    19 views0 comments
    Serra Kia (AL) Supports KS Awareness
    Rene King
    • Dec 9, 2021
    • 1 min

    Serra Kia (AL) Supports KS Awareness

    You never know who you might touch by simply sharing your story! Kabuki Dad, Jeff Clay, was elated when he learned that his employer...
    57 views0 comments
    Kabuki Syndrome in the News | Canada
    Rene King
    • Dec 9, 2021
    • 1 min

    Kabuki Syndrome in the News | Canada

    Check out this fabulous article, featured in our December newsletter! The writer, ATK volunteer Randy Pinsky, shared this write up on...
    14 views0 comments
    Coffee & Cookies ... for a cause!
    Rene King
    • Dec 3, 2021
    • 1 min

    Coffee & Cookies ... for a cause!

    THEY'RE BACK! Kabuki Coffee and Chocolate Covered Oreos are now back in stock! Many options to choose from for local (Alaska delivery)...
    75 views0 comments
    One Rare Heart features Kabuki Syndrome
    Rene King
    • Oct 5, 2021
    • 1 min

    One Rare Heart features Kabuki Syndrome

    One Rare Heart podcast publishes it's latest episode exploring Kabuki Syndrome. Derren dedicates this episode to his beautiful daughter,...
    19 views0 comments
    Zebra Gnomes available now!
    Rene King
    • Oct 2, 2021
    • 1 min

    Zebra Gnomes available now!

    These adorable, custom made gnomes are available in the ATK store while supplies last. Why a zebra pattern rather than green? The zebra...
    16 views0 comments
    Rare is Beautiful is BACK!
    Rene King
    • Sep 16, 2021
    • 1 min

    Rare is Beautiful is BACK!

    ATK's 2013 Rare is Beautiful shirt is back, with a twist. :) This booster is open through Sunday, September 26th. Orders should be at...
    26 views0 comments
    Upcoming Webinar: Neuropsychology in KS
    Rene King
    • Sep 10, 2021
    • 1 min

    Upcoming Webinar: Neuropsychology in KS

    You’re invited to attend this free webinar hosted by the Roya Kabuki Program! The More You Know: Neuropsychology in Kabuki Syndrome...
    22 views0 comments
    Team ATK is growing!
    Rene King
    • Sep 10, 2021
    • 1 min

    Team ATK is growing!

    I am incredibly grateful for all of the individuals that selflessly give to the Kabuki Syndrome community through ATK. Please take a...
    16 views0 comments
    Tail Lights for Bryce Memorial Cruise Raises $705 for ATK
    Rene King
    • Sep 1, 2021
    • 1 min

    Tail Lights for Bryce Memorial Cruise Raises $705 for ATK

    Mike's American Muscle Cars and Mobay Cruise for a Cause Gulf Coast hosted the 2021 Inaugural Tail Lights for Bryce Memorial Cruise-In on...
    40 views0 comments
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    All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

    © 2013-2022 ALL THINGS KABUKI