We asked, they answered! Please follow the link below to read the Roya Kabuki Programs response to your questions about COVID-19 and Kabuki Syndrome. http://...

ATK Junior Volunteer (and Kabuki Syndrome Sibling) Camila is using her quarantine time to bless Kabuki Kids and their siblings through books! Check out her ...

We have distributed this notice on our social media pages, but for those without ... We are following the news and in contact with our medical team. We have...

We first met the Todd Family in Cleveland, Ohio at the 2018 ATK Kabuki Syndrome Conference and Family Gathering. Their son, Kevin, was diagnosed with Kabuki ...

They say, "It takes a Village" to raise a child; the same can be said when it comes to running and fundraising for an all-volunteer patient advocacy group. F...

A message from the National Organization for Rare Disorders! Have you sought out-of-state care through Medicaid? Let us know! NORD is looking to hear from ra...

Watch this Facebook Live Q & A with ATK and Dr. Dominic D'Agostino on September 12, 2019. Due to connectivity issues, we suggest you start this youtube video...

On August 5, 2019 the Bexley Times shared an inspiring story about the Johnston family and their efforts to promote awareness and support research for geneti...

Emmett is a sweet 2-year-old Kabuki Kid also diagnosed with HLHS (hypoplastic left heart syndrome). Emmett requires oxygen 24-7. Check out the amazing creati...

Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford Research | CoRDS). Clic...

Kabuki Adult, Andrea Sultan, is featured on her local news. Watch the video here: https://www.wjhl.com/local/river-s-way-bristol-businesses-helping-provide-w...

Pauline Saladin joins the All Things Kabuki Board of Directors as Secretary. Pauline has been an ATK volunteer since its inception. We're excited to have her...

Kabuki Mom, Betsy Jackson, rocked the 123rd Boston Marathon on April 15th, raising more than $10,000 for Kabuki Syndrome research! We’re so blessed to have s...

President Donald J. Trump signed the bipartisan Advancing Care for Exceptional Kids Act of 2019 (ACE Kids Act) into law. Read the Press Release from the Chil...

All Things Kabuki hosts second annual family gathering in Cleveland, Ohio. Background on event, speakers and awards.

Olivia Estrella was born on October 20, 2016 and passed away on August 3, 2018. All Things Kabuki is accepting donations on behalf of the Estrella Family to ...

Functional Formularies focuses on making a blenderized diet using whole foods instead of chemicals. This is the success story of Elijah VanD

ATK would like to thank the community for their efforts to meet a $30,000 research goal! We exceeded our goal in less than one month! Dr. Aaron Denson presen...

The 2018 ATK Family Gathering & Conference was held on July 13th and 14th in Cleveland, Ohio. We were honored to host 59 families affected by Kabuki Syndrome...