ATK is joining our friends at the Roya Kabuki Clinic again this year for the Boston Children's Hospital's Eversource Walk for Kids... only this year, it's VI...

ATK Junior Volunteer, Camila, request your help in sending Messages of Hope and Support to Bella, Bryce & Sierra, Kabuki Warriors currently fighting for thei...

Individuals with Kabuki Syndrome & their siblings are invited to join us for our first Virtual Show & Tell on Saturday, May 30th at 4:00 pm EST! Registration...

Many of you are familiar with Dr. Dominic D'Agostino of USF. In 2018 we held a fundraiser to support his lab with their efforts to study the effects of keton...

Congratulations Dr. Angie Serrano! Angie is a friend, supporter, speaker and advocate for ATK and the Kabuki Syndrome community. She is also researching Kabu...

Author (and Kabuki Grandpa), Chuck Neighbors, reads his new book, I am Lucy! You can find this great book on Amazon ... but don't forget to shop Amazon Smil...

A few months ago we shared that due to time constraints, we would be phasing out the majority of our shirts (Memorial shirts excluded) and transitioning back...

Sending so much love to our community! Be safe! Be Brave! You are Kabuki Strong! xoxo Troy, Rene & Rikki https://www.ktuu.com/content/news/Wasilla-teen-share...

Meet Sabrina! This sweet young lady is related to Camila, ATK's junior volunteer. Today she is reading, Little Book of Big Monsters - Sally Big to the kids i...

ATK junior volunteer and Kabuki sibling reads: I Love you Night & Day by Smriti Prasadam-Halls. If you would like to donate children's books to Camila, pleas...

The Sibling Pen Pal Club is now live on our website! No age or ability requirements. This program is open to siblings around the globe. For more information ...

We asked, they answered! Please follow the link below to read the Roya Kabuki Programs response to your questions about COVID-19 and Kabuki Syndrome. http://...

ATK Junior Volunteer (and Kabuki Syndrome Sibling) Camila is using her quarantine time to bless Kabuki Kids and their siblings through books! Check out her ...

We have distributed this notice on our social media pages, but for those without ... We are following the news and in contact with our medical team. We have...

We first met the Todd Family in Cleveland, Ohio at the 2018 ATK Kabuki Syndrome Conference and Family Gathering. Their son, Kevin, was diagnosed with Kabuki ...

They say, "It takes a Village" to raise a child; the same can be said when it comes to running and fundraising for an all-volunteer patient advocacy group. F...

A message from the National Organization for Rare Disorders! Have you sought out-of-state care through Medicaid? Let us know! NORD is looking to hear from ra...

Watch this Facebook Live Q & A with ATK and Dr. Dominic D'Agostino on September 12, 2019. Due to connectivity issues, we suggest you start this youtube video...

On August 5, 2019 the Bexley Times shared an inspiring story about the Johnston family and their efforts to promote awareness and support research for geneti...

Emmett is a sweet 2-year-old Kabuki Kid also diagnosed with HLHS (hypoplastic left heart syndrome). Emmett requires oxygen 24-7. Check out the amazing creati...