Rene KingApr 231 minJoin Team Kabuki Friends for the 2022 BCH WalkWe invite the Kabuki Syndrome community, friends and family to join Team Kabuki Friends for the 2022 Eversource Walk for Boston...
Rene KingMar 21 minNEW Kabuki Syndrome Booster ATK's newest booster Kabuki Syndrome is live now through March 15th. Get your Toddler, Youth, Unisex, Women's, Tank or Hoodie before it...
Rene KingMar 21 minJoin Team Kabuki Friends for the 2022 BCH WalkIt's that time ya'll! Registration for the 2022 Eversource Walk for Boston Children's Hospital is underway. We invite the global Kabuki...
Rene KingJan 251 minFamily Resources: Medical Trauma FlyerATK is pleased to announce the launch of our Family Resource Program. Another amazing friend, Kabuki mom and new volunteer has taken the...
Rene KingJan 241 minATK Launches Advocacy Outreach ProgramWe are so excited about everything going on behind the scenes at ATK! We have a few programs launching this year and are eager to engage...
Rene KingJan 241 minWe Stand With Rare Booster now availableATK's 2022 Rare Disease Month booster is live now through February 2nd. Anticipated delivery date is February 18th. We did not have a lot...
Rene KingJan 241 min2022 Clinical FlyerATK's 2022 Clinical Flyer is now available to download or share with medical providers / offices in your area. PDF is available at...
Rene KingJan 91 minFamily Spotlight | January 2022Meet our sweet friend, Zia-Louise of New Zealand. You can read her about her journey with Kabuki Syndrome at: allthingskabuki.org/zia-lou...
Rene KingJan 91 minTakeda Survey Results PublishedDid you participate in Takeda Pharmaceutical's 2018 survey? They recently shared the publication related to that data with us. You can...
Rene KingJan 91 minHypotonia and Kabuki SyndromeHave you participated in the Hypotonia research opportunity at BCH? It's not too late! Here's another publication we received, by some of...
Rene KingJan 31 minATK Closed Due To Severe WeatherAll Things Kabuki is currently closed due to severe weather conditions with frequent power outages. The Mat-Su Borough Mayor has declared...
Rene KingDec 9, 20211 minSerra Kia (AL) Supports KS AwarenessYou never know who you might touch by simply sharing your story! Kabuki Dad, Jeff Clay, was elated when he learned that his employer...
Rene KingDec 9, 20211 minKabuki Syndrome in the News | CanadaCheck out this fabulous article, featured in our December newsletter! The writer, ATK volunteer Randy Pinsky, shared this write up on...
Rene KingDec 3, 20211 minCoffee & Cookies ... for a cause!THEY'RE BACK! Kabuki Coffee and Chocolate Covered Oreos are now back in stock! Many options to choose from for local (Alaska delivery)...
Rene KingOct 5, 20211 minOne Rare Heart features Kabuki SyndromeOne Rare Heart podcast publishes it's latest episode exploring Kabuki Syndrome. Derren dedicates this episode to his beautiful daughter,...
Rene KingOct 2, 20211 minZebra Gnomes available now!These adorable, custom made gnomes are available in the ATK store while supplies last. Why a zebra pattern rather than green? The zebra...
Rene KingSep 16, 20211 minRare is Beautiful is BACK!ATK's 2013 Rare is Beautiful shirt is back, with a twist. :) This booster is open through Sunday, September 26th. Orders should be at...
Rene KingSep 10, 20211 minUpcoming Webinar: Neuropsychology in KSYou’re invited to attend this free webinar hosted by the Roya Kabuki Program! The More You Know: Neuropsychology in Kabuki Syndrome...
Rene KingSep 10, 20211 minTeam ATK is growing!I am incredibly grateful for all of the individuals that selflessly give to the Kabuki Syndrome community through ATK. Please take a...
Rene KingSep 1, 20211 minTail Lights for Bryce Memorial Cruise Raises $705 for ATKMike's American Muscle Cars and Mobay Cruise for a Cause Gulf Coast hosted the 2021 Inaugural Tail Lights for Bryce Memorial Cruise-In on...