May 10, 2019

Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford Research | CoRDS). Click here to listen to the podcast. 

May 10, 2019

 Kabuki Adult, Andrea Sultan, is featured on her local news. Watch the video here:

https://www.wjhl.com/local/river-s-way-bristol-businesses-helping-provide-workforce-skills-to-those-with-special-needs/1992949454?fbclid=IwAR2YdNbfhVOOPcJFSlD_AgmtEl_6jUyobjEevEFtxwLuUVEA...

May 3, 2019

Pauline Saladin joins the All Things Kabuki Board of Directors as Secretary. Pauline has been an ATK volunteer since its inception. We're excited to have her officially join Team ATK! If you haven't met Pauline yet, she'll be volunteering at the ATK Conference again, t...

April 20, 2019

Kabuki Mom, Betsy Jackson, rocked the 123rd Boston Marathon on April 15th, raising more than $10,000 for Kabuki Syndrome research! We’re so blessed to have such incredible advocates, willing to step up and fight the good fight - to win the war against rare disease! 💚

T...

April 18, 2019

President Donald J. Trump signed the bipartisan Advancing Care for Exceptional Kids Act of 2019 (ACE Kids Act) into law. Read the Press Release from the Children's Hospital Association here: https://www.childrenshospitals.org/Newsroom/Press-Releases/2019/President-Trum...