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Writer's pictureRene King

Patient Registry is Fully Funded!

You are A*M*A*Z*I*N*G! Our Kabuki Syndrome Patient Registry is FULLY FUNDED in just 15 days!!! As of 10:30 am we reached $10,004! Thank you to all that shared, donated, bought shirts, and hosted FB Fundraisers. It takes a village and ours is incredible.


Note: All funds raised above the $10,000 needed to launch the registry will be designated to the registry fund, to cover annual maintenance fees.


THANK YOU ALL SO MUCH! We will keep you posted on the launch. xoxo Team ATK




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