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<< Men Supporting Men >>


The Kabuki Syndrome Dad's Virtual Support Group was established to help Dad's (and male caregivers) connect, share and support each other. Whether you're married or a single parent, raising a child with a rare disease often causes isolation and even self-doubt. This group replaces our original Parent Mentor Program, but the goal for this program is the same ... that we would provide a platform and opportunities for Dad's to connect, offer support and develop lasting personal connections within the ATK community. 

This group will officially launch in May 2023. We plan to meet on the FOURTH THURSDAY of each month at 9:00 pm EST for approximately 60 minutes. We will re-evaluate this day/time three months after launch. 


Dad's will have the opportunity to meet as a group and as the group grows, there will be an opportunity to join much smaller, topic specific, breakout rooms for a designated amount of time. We will continue to update this page as adjustments are made to provide the best experience possible. 

This group will be hosted through zoom and registration will be required for each event. 

If you would like to have information related to this Dad's Group emailed to you, please enroll via the link below. We anticipate sending one or two emails per month with event information, group updates, polls regarding group topics, needs or anticipated changes, requests for moderators, etc. Additionally, those that sign up for this mailing list will have the opportunity to program development information and volunteer to mentor or request to be connected to a parent mentor with experience in specific areas. 

Join the DAD'S GROUP Mail List HERE

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