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<< Women Supporting Women >>


The Kabuki Syndrome Mom's Virtual Support Group was established to help Mom's (and female caregivers) connect, share and support each other. Raising a child with a rare disease often causes isolation and even self-doubt. This group replaces our original Parent Mentor Program, but the goal for this program is the same ... that we would provide a platform and opportunities for Mom's to connect, offer support and develop lasting personal connections within the ATK community. 

This group will officially launch in June 2023. We plan to meet on the SECOND THURSDAY of each month at 8:00 pm EST for approximately 90 minutes. We will re-evaluate this day/time three months after launch. 


Mom's will have the opportunity to meet as a group and then join much smaller, topic specific, breakout rooms for a designated amount of time. We will continue to update this page as adjustments are made to provide the best experience possible. 

This group will be hosted through zoom and registration will be required for each event. 

If you would like to have information related to this Mom's Group emailed to you, please enroll via the link below. We anticipate sending one or two emails per month with event information, group updates, polls regarding group topics, needs or anticipated changes, requests for moderators, etc. Additionally, those that sign up for this mailing list will have the opportunity to program development information and volunteer to mentor or request to be connected to a parent mentor with experience in specific areas.

Join the MOMS GROUP Mail List HERE

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