Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford...

Kabuki Adult, Andrea Sultan, is featured on her local news. Watch the video here: https://www.wjhl.com/local/river-s-way-bristol-business...

Kabuki Mom, Betsy Jackson, rocked the 123rd Boston Marathon on April 15th, raising more than $10,000 for Kabuki Syndrome research! We’re...

All Things Kabuki hosts second annual family gathering in Cleveland, Ohio. Background on event, speakers and awards.

Olivia Estrella was born on October 20, 2016 and passed away on August 3, 2018. All Things Kabuki is accepting donations on behalf of the...

Functional Formularies focuses on making a blenderized diet using whole foods instead of chemicals. This is the success story of Elijah VanD

ATK would like to thank the community for their efforts to meet a $30,000 research goal! We exceeded our goal in less than one month! Dr....

The 2018 ATK Family Gathering & Conference was held on July 13th and 14th in Cleveland, Ohio. We were honored to host 59 families...

Perth Children's Hospital Foundation, located in Subiaco, Western Australia, has a series on their Facebook page titled #stitchesstories

Cristian Denton, age 8, resides in the Atlanta, Georgia area. Today, on Rare Disease Day, he received a special shoutout from local news...

While Kabuki syndrome is a rare disease, it's gained more traction recently. There are research studies being done in the US, and doctors...

The holidays are supposed to be a time of celebration, eating too much, giving back and spending time with family. But for Katie Pape,...