All Things Kabuki and the National Organization for Rare Disorders launched the first-ever patient registry for Kabuki Syndrome today, August 1, 2022. Caregivers and patients of clinically and genetically diagnosed patients are invited to participate in this research effort. Please see ATK and NORD's joint Press Release below. For additional information visit our website at allthingskabuki.org/registry.
Registry Press Release - August 1 2022
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