ATK is joining our friends at the Roya Kabuki Clinic again this year for the Boston Children's Hospital's Eversource Walk for Kids... only this year, it's VIRTUAL! We encourage YOU, your FRIENDS and FAMILY to show your support and join team KABUKI FRIENDS. There is NO registration fee. No minimum fundraising requirements. This is a fabulous opportunity to join our team and show Boston Children's what an impact the Roya Kabuki Program has on families all across the nation! As

Dr. Olaf Bodamer (Boston Children's Hospital) and Rene King (All Things Kabuki) discuss Kabuki Syndrome with Austin Lechtner (Sanford Research | CoRDS). Click here to listen to the podcast. #cordscast #sanfordresearch #kabukisyndrome #DrOlafBodamer #reneking #AllThingsKabuki #patientadvocacy #research

Pauline Saladin joins the All Things Kabuki Board of Directors as Secretary. Pauline has been an ATK volunteer since its inception. We're excited to have her officially join Team ATK! If you haven't met Pauline yet, she'll be volunteering at the ATK Conference again, this July, in Cleveland, Ohio. See you there. #allthingskabuki #paulinesaladin #boardofdirectors #patientadvocacy

All Things Kabuki hosts second annual family gathering in Cleveland, Ohio. Background on event, speakers and awards.

ATK would like to thank the community for their efforts to meet a $30,000 research goal! We exceeded our goal in less than one month! Dr. Aaron Denson presented Dr. Dominic D'Agostino with a check on Thursday! Dr. Corinne Stobaugh shared the following, "You did an amazing job and we exceeded our goal of $30,000!! Thank you all so much for making this project happen! We hope to have preliminary results by the end of the year. Currently, Dr. D'Agostino is finalizing the transfe