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One Rare Heart features Kabuki Syndrome

One Rare Heart podcast publishes it's latest episode exploring Kabuki Syndrome. Derren dedicates this episode to his beautiful daughter, Grace, who passed away earlier this this. I was deeply touched by this podcast and have no doubt all those that have the opportunity to hear it will be too.


You can find a link to the podcast on our website at: allthingskabuki.org/webinars





 
 
 

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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.

© 2013-2025 ALL THINGS KABUKI

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