NORD wants to hear from you!

A message from the National Organization for Rare Disorders! Have you sought out-of-state care through Medicaid? Let us know!


NORD is looking to hear from rare disease patients who have sought or are seeking care from an out-of-state specialist while enrolled in Medicaid. Click logo below to share your story!



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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.
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