Family Spotlight

The Family Spotlight was created for Kabuki Syndrome families to share their journey with the community. Photos, hurdles, milestones ... while each family's experience is different, they are vastly similar. Thank you for your willingness to share your story!

Once you submit your story, photo release (if not on file), and up to 5 (clear, well lit) photos, Serena Burks, ATK's Family Spotlight Writer, will email  you with an anticipated publish date. A draft of your story and will be emailed to you by the 25th of the month prior to publication. Parents will have until the 30th to make changes. Spotlight stories are shared on our website and social media pages on the 5th of each month. 

Email Spotlight questions to  Upload Photo Release here or email to