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Family Spotlight

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The Family Spotlight was created for Kabuki Syndrome families to share their journey with the community. Photos, hurdles, milestones ... while each family's experience is different, they are vastly similar. Thank you for your willingness to share your story!

Once you submit your story, photo release (if not on file), and 5 - 10 (clear, well lit) photos, one of our volunteer writers (Stacy, Serena, Candace or Stephanie) will email you to introduce themselves, ask any questions and later provide you with a proof to review before publication. We strive to provide a draft of your story no later than the 25th of the month prior to publication. Parents will have until the 30th to make changes. Spotlight stories are shared on our website and social media pages on the 5th of each month. 

Email Spotlight questions to  Upload Photo Release here or email to Photos should be submitted via email with Spotlight in the subject line. Thank you. 

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