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Kabuki Syndrome caregivers (individuals, couples, adult siblings, etc.) are invited to join us for an hour of conversation and connection. This event is held on the fourth Saturday of the month and is moderated by KS parents, Jesse and Olivia Ruzic.

Each month participants have the opportunity to connect and share the highs and lows, tips and tricks, failures and successes .... all things related to that month's topic. 

This is a fee-free event; however, registration is required. Please visit our Events page HERE to register. Questions? Email:

Upcoming Event Dates & Topics:

September 23 | IEPs and Education Resources

October 28 | Supporting Siblings

November 25 | Navigating Holidays

December 16 | Three Steps Forward, Three Steps Back; Developmental Progression and Regression in Kabuki Syndrome

January 26 | Managing Multiple Diagnoses

February 24 | Things We Love About Kabuki Syndrome

March 29 | Guardianship & Resources as KK's Transition to Adulthood

April 26 | Autism & Kabuki Syndrome

May 23 | Finding Genuine Community (For Yourself, Your Family & Your KK)

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