Kabuki Syndrome at the NORD 2020 Summit

The Roya Kabuki Program, in collaboration with All Things Kabuki, presented this poster at the 2020 National Organization for Rare Disorders 2020 virtual Summit.
 
Our hope is that this poster brings a broader awareness of Kabuki Syndrome to the rare disease and medical communities. Additionally, it highlights the benefit of collaboration between both academia and patient communities.  To learn more about the Roya Kabuki Program at BCH, click here. To view this poster in PDF, click here
NORD Summit Poster 2020.jpg
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All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.
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