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Fri, Jul 19


Cleveland Airport Marriott

ATK's 2019 Kabuki Conference & Family Gathering

ATK's 2019 Kabuki Conference & Gathering!

We have reached event capacity. Registration is now closed.
See you in Cleveland!
ATK's 2019 Kabuki Conference & Family Gathering
ATK's 2019 Kabuki Conference & Family Gathering

Time & Location

Jul 19, 2019, 3:00 PM – Jul 21, 2019, 2:59 AM

Cleveland Airport Marriott, 4277 W 150th St, Cleveland, OH 44135, USA


About the event

5/5/19 UPDATE: Please note any guests that register for this event on/after May 5th will be on a wait list. We are currently at registration capacity. Email questions to Rene King at

The ATK Kabuki Syndrome Conference & Family Gathering will be held at the Cleveland Airport Marriott in Cleveland, Ohio. Families are welcome to get together for an informal meet and greet on Friday, July 19th. We are working on a possible group outing, more to follow. The majority of the event details will be posted on our Facebook event over the next few weeks.

The conference will be held in the Grand Ballroom on July 20th. Registration will open and breakfast will be available at 8:30 am. The conference is tentatively expected to run from 10:00 am to 5:00 pm. Guests are welcome to return after a dinner break for the kids karaoke and dance party.

ATK's block room rate is $82 per night, plus tax. Guests are responsible to reserve and cover their room rentals. Due to limited space, please cancel your reservation promptly if you're unable to attend. Families that apply for scholarship should NOT make a room reservation. Scholarship room reservations are made by ATK. Internet and parking ARE included in the rate.

We are honored to host a few of our warrior families … Joe & Fran Golab (Elizabeth), Darren & Stacey McKiernan (Bryce) and Tim & Lauren Niermann (Gracie). Guest speakers include ATK partners: The Roya Kabuki Program & Takeda Pharmaceuticals.

This event is sponsored by Takeda Pharmaceuticals. Their generous sponsorship allows us to host this event, Fee Free! Registration is required and guests are responsible for their own travel and lodging expenses. Breakfast and lunch will be provided on Saturday. Scholarship funding is available for families experiencing a financial hardship and unable to attend without support.

Due to contract and preparation deadlines, REGISTRATION WILL CLOSE ON JUNE 1st, no exceptions. Email event questions to See you there!


  • ATK Family Gathering 2019

    2019 ATK Kabuki Syndrome Conference & Family Gathering! Your ticket to a life changing event.

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