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PREMIO ELIZABETH GOLAB MEMORIAL

The Elizabeth Golab Memorial Award was established in 2015. Elizabeth Golab, daughter of Joe and Fran Golab, was born on April 29, 1998. Elizabeth was diagnosed with Kabuki Syndrome in October 1999. 

Elizabeth's 2013 Christmas wish, denied by a local PA charity due to her age, led to the launch of Operation Kabuki Christmas, now ATK's most successful annual charity program. 

Elizabeth passed away on March 15, 2015, after a long, fierce battle with Kabuki Syndrome. This beautiful, young warrior was the inspiration behind All Things Kabuki, the only U.S. patient advocacy organization serving the global Kabuki Syndrome community. 

When Elizabeth passed away, her mother asked ATK's Founder to not forget her daughter. With the promise to never forget the little girl that inspired OKC and ATK, the Elizabeth Golab Memorial Award was established. With Joe and Fran Golab's blessing, the Elizabeth Golab memorial Award is presented annually to an individual that has made a significant impact within the Kabuki Syndrome community. 
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2015 |
Cheryl Lee

2015: Cheryl Lee2016: Dr. Hans Bjornsson2017: Serena Burks2018: Dr. Olaf Bodamer2019: Tara Daly2020: Holly O’Brien2021: Tiana Capri2022: Stacy Limperis2023: Jenn Ward

2016 |
Dr. Hans Bjornsson

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Watch the community appreciation video HERE

2017 |
Serena Burks

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2018 |
Dr. Olaf Bodamer

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2019 |
Tara Daly

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2020 |
Holly O'Brien

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2021 |
Tiana Capri

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2022 |
Stacy Limperis

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2023 |
Jennifer Ward

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2024 |
Joey Biroschak 

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2025 |
Jake & Megan Berwyn

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1st Annual Kabuki Klassic in support of ATK

¡HAGA UNA DONACIÓN DEDUCIBLE DE IMPUESTOS HOY!
N. ° de EIN: 47-5441487
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All Things Kabuki (ATK) es una corporación sin fines de lucro 501 (c) 3 registrada con sede en Wasilla, Alaska. Somos el único grupo de defensa de pacientes de EE. UU. Que apoya a la comunidad Kabuki a nivel mundial. Nuestro  La misión es crear conciencia, incitar a la investigación y apoyar a las personas y familias afectadas por el síndrome de Kabuki.

© 2017-2021  TODAS LAS COSAS KABUKI

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