ALL THINGS KABUKI PROGRAMS
ANNUAL AWARENESS CAMPAIGN
Follow ATK's Annual Rare Disease Awareness Campaign every February and our Kabuki Syndrome Awareness Campaign every October on Facebook, Instagram and Twitter. World Rare Disease Day is February 28th and Kabuki Syndrome Awareness Day is October 23rd.
We love to celebrate! The ATK Birthday Club is open to children and adults diagnosed with Kabuki syndrome. Upon enrollment, members will receive a personalized Welcome to the Club card. Each month ATK gives a Birthday Club shout out on Facebook and mails a personalized birthday card, vinyl Kabuki sticker, and small gift to celebrate their special day! Enroll today!
Once a month we shine the spotlight on a Kabuki family and their journey. ATK volunteer, Serena Burks, is our Family Spotlight Writer. We encourage families willing to share their story to sign up today.
OPERATION KABUKI CHRISTMAS
Blessing Kabuki families experiencing a financial hardship during the Christmas season. Operation Kabuki Christmas (OKC) was first launched in 2013 and is the program that began ATK. Every October, Kabuki families experiencing a financial hardship are invited to apply for assistance through this program. The funds that are raised and donated to this program are used to purchase (and direct ship) gifts on each child's Amazon Wish List. Thanks to our generous sponsors, ATK has been able to help provide Christmas gifts to a total of 148 children in 57 families. This program is currently open to US families only.
PAY IT FORWARD CAMPAIGN
Raising awareness for Kabuki syndrome through Random Acts of Kindness! Order your FREE Pay It Forward cards today!
ANNUAL MEDICAL OUTREACH
Every February, ATK sends an intro letter and clinical flyer to clinicians across the United States. The purpose of this outreach is to educate the medical community about Kabuki syndrome, provide points of contact across every region, and see undiagnosed individuals get the answers they and their families may have been searching for. We invite the community to partner with us in this outreach.