PARENT MENTOR PROGRAM

The purpose of the Parent Mentor Program is to help alleviate the uncertainty and isolation common when parenting a child with a rare disorder, by providing an opportunity for lasting personal connections within the ATK community. - Bonnie Ozinga, Director

The Parent Mentor Program launched in February 2020. Kabuki Syndrome Parents (and primary caregivers) are encouraged to enroll. Once your enrollment is received, the director will reach out via email and complete the process to match you with a mentor or mentee. We expect to make changes to this program throughout the year as we get a better feel for the wants and needs of the community.

What should you expect? Frequent interaction from a mentor online, over the phone and/or in person when possible. The program director will email monthly "conversation starters" and quarterly check-in's to ensure your mentor/mentee match is a good fit and communication is as expected. 

Questions, comments, struggles along the way? Please email Bonnie at mentor@allthingskabuki.org

If you would like to be a mentor, or be matched with a mentor, enroll here

MAKE A TAX DEDUCTIBLE DONATION TODAY!
EIN #: 47-5441487
All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome.
  • Twitter - White Circle
  • Facebook - White Circle
  • White Instagram Icon
  • YouTube - White Circle

© 2017-2020 ALL THINGS KABUKI