KABUKI SYNDROME SURVEY 

SPONSORED BY                        

This survey is now closed!

 

Thank you to all that took the time to complete the Takeda sponsored Kabuki syndrome survey. The participation goal was met and the survey has been closed.

Update: Takeda presented their survey results at the 2018 ATK Family Gathering and offered this great brochure to families. Takeda Patient Survey Results

We will provide information regarding future surveys and clinical trial opportunities as they become available. 

MAKE A TAX DEDUCTIBLE DONATION TODAY!
All Things Kabuki (ATK) is a registered 501(c)3 non-profit corporation based out of Wasilla, Alaska. We are the only U.S. patient advocacy group supporting the Kabuki community globally. Our mission is to raise awareness, incite research, and support individuals and families affected by Kabuki Syndrome. 

© 2017-2019 ALL THINGS KABUKI

  • Twitter - White Circle
  • Facebook - White Circle
  • White Instagram Icon
  • YouTube - White Circle